Welcome!! Grab a cup of coffee and visit with us! We hope you enjoy our story! (((HUGS)))

Welcome!! Grab a cup of coffee and visit with us! We hope you enjoy our story! (((HUGS)))

Friday, March 20, 2015

Is it Friday already?

 MA and her puzzle in the living room. :o) Next to her on the left is her walker loaded with things to do. If the walker was bigger she'd bring out more! 

She turned 58 this year. For years she would tell everyone how old "I" was. Because we are the same age. I hated it! I don't need everyone to know how old I am do I? But now that she has Alzheimers, and she is very quiet. I miss that. I don't know why I put up a fuss when she had to tell everyone. 
Now she denies her age because she has a fear of dying. She confidently tells us all "I'm young yet. I'm in a thirties."

Thank goodness my boys travel with very little! :o) A toy or a therapeutic chewie that Noah has here, are all they need! :o)
Noah loves this chair! His bed is behind him.

He turns himself sideways in his bed and bends his head back and bounces like he did when he lived in his crib. 
I move him time after time, in his sleep he works his way back. Then he gets a little sore on his forehead from it.
It took him a long time to stop seeking a bed or laying on the floor like he was in bed. He was so used to that life.

Crazy hair days here, everybody needs a trim!

 This silly boy runs from room to room to room. He's not interested in any beds! LOL! In fact when his bed rail is opened in the morning he runs out of bed and into another room as fast as he can. As if to say I don't need to be in bed!! I need to be free!
He wants to be independent in every area.

Sometimes Jacob is mean to his brothers. Sometimes he'll fight for toys, or push. I never have to worry about Mosie because he will run or avoid Jacob if he sees that Jacob or Julius might hurt him. 

Jacob doesn't always win the toy fight with Mosie now! :o)
Julius used to push Mosie every time he walked past him. Mosie learned quickly to avoid Julius' arm. Sometimes he even went back and pushed Julius. Which was a challenge because little brother Julius is taller! And a push from Mosie doesn't hurt.

 Julius here watching Isaiah with the camera! He is our curious little monkey and if you don't watch his hands, he'll touch everything! :o) He'd love to touch the camera! 

Julius is good about letting us know that he's in trouble by crying. He hates trouble. He also hates if anyone else is in trouble, not just him.
Unfortunately that never stops him from finding trouble.

Julius is such a big boy he has the top bunk bed! There's a bed rail on the side and on each end of the bunk a piece of fiberboard so he won't hang over! 

Julius used to like to share a bed with Pauly, and then he started to be mean to Pauly in the night. The same way Jacob was mean to Noah when they shared a bed. It seems they mature to a certain point and then Jacob and Julius decided to assert a little dominance. If Jacob is mean to Julius he wins. As tough as Julius thinks he is, he won't push back. And Jacob is eye to eye with him.

 Julius and Pauly used to do everything together. But Pauly has remained behind struggling and Julius has grown leaps ahead. Julius still has a soft spot for Pauly and gives him a kind touch here and there. I love when I see that! Pauly loves it too.

Julius is still mommas boy and I LOVE that. But its hard when I want him to listen to his older kids! He thinks he only has to listen to me. But he'll talk back to me sometimes too!!

                                  "Oh-Oh! Arms down Mosie!"
Pauly prefers to play in the hallway where he can look out the big hallway windows. Mosie has decided that he wants to help Pauly. He noticed that Pauly needed a friend. :o) Pauly likes to hold hands. Before only Julius would let Pauly hold hands with him. Mosie would throw his hand off. And Jakie and Noah would let go. Now Mosie holds hands with Pauly and leads him here and there. Or he sits by Pauly and sweetly takes his hand. It's so cute and Pauly treats him as the big brother even tho Pauly is bigger and the same size! That is Mosie's truck he is sharing with Pauly. :o) Such sweet boys! 

 Isaiah can always get Jacob to laugh! I can never get Jacob to laugh! Normally he is so grumpy! I LOVE his goofy boy smiley face! He's in his sister's room looking around. Most times he likes to go in his room and stand near his bed. He would like to get in his bed but the bed rail stops him. Those old habits die hard. :o(

 Jacob likes to take toys, pinch and push. Noah and Pauly can't defend themselves from Jacob so we have to watch them around him. Noah and Pauly don't understand meanness at all. They are too trusting. In fact Mercy one day decided to bite Pauly's foot. We knew she would bite us, and herself. But she had never bitten her brothers. Poor Pauly let out a scream. We rescued him, he was too afraid to move.
All 5 boys are not so sure about Mercy. And she kind of just does her thing around them like she's part of the group. But she's so much taller- the boys aren't sure what to think about that! ;o)

Miss Mercy here thinking about if she will cooperate with pictures or not. On her right side is a piece of fiberboard so they don't "hang" over the stair railing. Pauly especially was fascinated with doing that!! OY! Now they can only walk past. And I don't have a heart attack seeing Pauly hang over! Thank goodness for zip ties and fiberboard!
Mercy is stronger than the boys and she pulled the board out the first time Tom put it up. She hates boundaries!
I just noticed in this picture the remnants of her poor little bloody nose. People with Sotos have "soft" skin. They bruise and bleed easily. Once I washed her face and just from the rag rubbing it, it turned so beet red I thought I'd injured her! She gets bloody noses so easy. Just like our Molly did.

She is the youngest girl of 5 older brothers from Bulgaria. So we have to dress her cute! :o) She has a wardrobe to die for! LOL!

 Julius taking Mosie's truck - busted!! LOL! 
Mosie is too busy in the background watching Isaiah take pictures to notice!

Mosie likes this chair too! He's not fond of sharing it. But he knows sharing with Noah is safe. Julius might push even a big brother out of the chair for fun.....sigh.

Miss Mercy singing a happy song. No words, just lots of pretty "ahhh-ah-ahhh" :o) When she's happy she is incredibly happy. It helps for us remember her struggles when she's crabby. Life isn't easy for my little(big) peanut. :o)

So what's new with you? :o)

Friday, March 13, 2015

Time to Eat!

Jakie waiting for his dinner. 
It was cold this Sunday so some of us stayed in our jammies.
We attend our Church livestream. The internet can be such a blessing! It also brought us 5 precious boys from a Country across the ocean!
(behind Jakie our glass collection we sell for diapers- LOL! It is a blessing. :o) We enjoyed it, but now we have more important needs.)

 I had noticed this punpkin (Julius) who writes with his right hand was eating more frequently with his left hand?
(on the shelf behind him is our tea party supplies for the older 4 kids. :o)

And then I saw this. :o( 
Some helpers are not being careful which hand they help the boys eat with!! OY!
So Jakie here is not happy at all to eat with his left hand. Showing my helpers their error helped Jakie try harder to hold his spoon!! 

But Julius refuses to use his right hand to eat now! So now I'm wondering if we should let him use his left hand to write since he's so good at using it for eating? OY!

This was another problem. My helpers were using a large (Mercy) handled spoon for Pauly, and his hand is too small to hold it!!
Julius above is using the correct adaptive spoon size for him and Pauly.
Mercy uses the large handles because her hand strength is poor and she has long beautiful hands/fingers.

My helpers are doing fantastic jobs helping. Especially since the boys need less hands on help from me. I couldn't get everything done without my loving caring helpers! During the boy's meals I cook for MA and SP and the older kids. Dad was watching, but he is less observant and had not noticed the things I mention. ;o) I guess I have to check up on their progress myself more often rather than go by verbal reports! :o)

Miss Mercy has a new habit that needs correcting! (always sumthin! like her mamma!) She now likes to put her head "in" her bowl!! Here she's giving me the look- "don't touch my food!" LOL!
I wish I looked this cute when I was cranky! ;o)

Mosie and his brothers do not like to "hold" their bowls as they eat. The bowls do have rubber grips on the bottom. But when we eat out the bowls don't! So we encourage no wild/free hands as you eat! ;o)
Of course it takes time! We get excited when all we have to say is "hold your bowl!" as a reminder and they do it! Otherwise we do hand over hand as we ask them to hold the bowl. Soon they listen/learn to respond to our verbal requests on their own.

They teach us patience every day. And with such adorable faces- who wouldn't want to be patient for them!

Noah is getting the hang of feeding himself. He is so proud! He laughs when his food comes and he concentrates hard on it! This is amazing because he's such an easy going boy that you could easily think he doesn't "care" about learning skills. Especially since he is lower functioning. But he does like learning things that excite him. Finding out what they are is some times hard, but always worthwhile!

You can see Kitty at the end of the table is quite bored! She's standing there so Julius can't throw food onto the floor- he does that for fun! Such a little mischievous monkey! 
If you have ever watched the"Noddy" show? It used to be on pbs. We have a Noddy video called "Bunky" about a naughty monkey who says he's a "Bunky". A Bunky is a "Bunny-Monkey". We call Julius our "Bunky" LOL!

Spring came to MN quickly and we bought another picnic table/bench for the boys to eat outside! Sunday is supposed to be 66 degrees!! Hoping we can have our dinner out there! We'll take photos!

Tonight we have our Family Fridays dinner. (that we have every Friday) Big sister Grace and her husband Dan always come! So much fun!

((((HUGS)))) to all! God is GOOD! 

Thursday, February 26, 2015

Teaching challenges for me

One of these days I am going to get "one" photo where all 5 boys are looking at me! LOL!
We were in the midst of helping them dress for bed. When I thought of giving it another try! LOL!! 
We actually have 5 pairs of matching jammies this year. So I am going to try again when we can coordinate that!
Here I said Noah's name and only he and Pauly looked!! LOL!

My Julius in the camo shirt has serious ADHD. In a few years we may consider trying medication. In these pictures you can see his constant fidgeting. He is beginning to disturb his brothers during school time. And it could start interfering with his school work. So far I can work his wiggles into his IEP! LOL!  

 I know I say it all the time but this boy has little angel wings and a halo. He is such a sweet soul. He's playing legos here with big brother Samson. Samson dislikes the "toy" pieces of the lego sets and Noah dislikes the lego blocks! Perfect!

 Don't mind my mess behind them. :o) I was asked to make some special prayer shawls for a dear friend's red hat group. The other boxes are storing yarn. 

The boys always keep busy. Samson has chores and school work. The little boys and Mercy have school and play. Samson likes to join in during free time. 

When the little ones aren't doing their school activities we use Montessori resources to teach them adaptive living skills- setting tables, putting their things away. The hard part of this is that with their years of having nothing, owning nothing, they do not view their things as "theirs". They don't even claim possession to anything. We all say "this is Noah's" or "this is Jacob's", but they don't really care. 

A dear friend wrote on her blog about how quickly they change physically for the better once they are home. But their minds take much longer to heal and learn. So we plug along. :o) 

They'd prefer to do school or play than help out or develop independent living skills. I'm hoping and waiting for a little light bulb to go off in their heads one day! LOL! I had thought watching our 4 non SN kids, Samson, MA, SP, Tom and I that they'd get the idea. But not yet.

I'm glad they can have school till age 22 for special ed. It has been a blessing for Samson. That way we can work at their pace.

Wednesday, February 25, 2015

Cupid's Birthday!

 Every February our "Cupid" has his birthday!!
This year he turned 10!!
Can you believe that the tiny little boy on the top sidebar of my blog is 10!!
We bought him a new size 4 suit. But sadly it is too tight in the body already. The pants of course are too long. But what a surprise that he's grown so much! He is in a size 5 sleeper. (with legs rolled up) But he wears size 4 boys shirts and size 3 pants.

In this picture (above) he's "yelling" into his hand! LOL! He thinks he's a "tough" guy! LOL! He also slaps his hands together as if to say "Watch out! I can get you!" But he'd never hit anyone. He just likes to act tough! 

He loves his little brother Pauly so much; that when he sees Pauly stuck "in" his autism, he gently takes him by the hand and they walk together to find something else to do!
He is so smart! And he is so sweet!

 He's watching TV here. Big brother Isaiah took the pictures for us.

We have been blessed that his silly baby teeth are falling out on their own as the adult teeth push through. In the meantime it's a "mess" in there. His dentist will not put him out or pull any until they are done falling out. 
He was so tiny before, it was too risky for anesthesia. As he grows it will be less risky. He had been put out twice for other medical procedures when he was tiny and it was very worrisome.

When Moses first came home he liked to "tickle" the back of his neck. It was a kind of nervous habit. He's almost doing it here. But he hesitates now because we ask him to "Put your arms down Mosie"!! He is gradually learning to relax his arms. He's learning to relax and hold them to his sides.
 He's very expressive with his hands. He vocally mimics sounds for me but does not like to say words. We have a new augmentative speaking device coming for him. It holds 1 word or phrase with 1 picto. I can't wait to see if he likes it. 

He shies away from our "speaking" board that I load for all of our non speakers. It has 6 openings. We also have a go-talk, a talk and learn and a new speak and learn we just received today! LOL!! So we are always switching things up to encourage him to use "words".

          Just chillin! And checking out what Dad is doing to the right.

He's thinking this suit is not as comfy as his fleece jammies we took off of him! :o)

               Arms up when he doesn't want to do something!
If he doesn't want to cooperate he gets upset that we can just pick him up if need be! LOL! He feels humiliated. 

 Silly boy LOVES to laugh! And we LOVE to laugh with him!!

Cute as a button! You can see why we call him our little Valentine Cupid!

 Isaiah trying to get a nice close up for my side bar!

We are losing cooperation here, his eyes are glazed over! LOL!!

                                            "Just let me watch TV Isaiah!"

                          "Oh Isaiah you are soooo funny!" (silly boy!)

                                O.K. People!! I'm outa' here!! 
                                He's "telling" Isaiah he is done! 

Are we SUPER BLESSED or what?? This big boy in a little body gives us so much JOY every day!